Charlotte Figi, the Colorado girl whose struggles with epilepsy ignited the global CBD craze, died at 13, likely of Covid-related complications.
New York Times
- At age 5, Charlotte, who suffered from Dravet syndrome, was suffering more than 300 seizures a week, about one every half-hour.
- Charlotte’s mother Paige researched CBD and found a grower who could provide it. They didn’t know if it would work, but Charlotte’s seizures were soon down to about one per month.
- Her story attracted international attention after Dr. Sanjay Gupta featured her in his 2013 CNN documentary Weed. Dr. Gupta reflected on her life this week. “She changed my mind and opened my eyes to the possibility that this was a legitimate medicine. In the process she changed the world.”
- In 2018, the U.S. Food and Drug Administration approved Epidiolex, a CBD drug developed by U.K. firm GW Pharmaceuticals for conditions like Charlotte’s.
- From the obituary: “Charlotte was adventurous. She liked to hike and ride on the front of a tandem bike with her mother, and she enjoyed riding horses with her sister. But what was most important, Ms. Figi said, is that Charlotte was oblivious to the movement she started.”
- This week the DEA descheduled an oral formula of Epidiolex which will make it easier for patients to access.
Covid also took the great singer/songwriter John Prine.
- Here’s stoner anthem “Illegal Smile,” off his 1971 self-titled album.